
It’s not necessarily the autism that destroys you. In fact, it’s rarely the big things people imagine when they hear the word.
Changing a fifteen-year-old in diapers sounds confronting to outsiders. They latch onto that detail as if it’s the worst of it.
But high dependency, on its own, is survivable.
What makes it unbearable is that it is endless – and that it didn’t arrive with a clear before-and-after. If this level of care had come suddenly, after an accident or illness, there would be understanding. There would be sympathy. There would be structure. And even a beautiful memory of a perfect child I once knew.
This is different.
Parenting a non-verbal child is painful – but not because of the silence.
Silence can be mercy.
It is just as painful as living with a child who never stops talking – except here, you never know what the screams mean. You never know what hurts. You never know what you’re getting wrong until something breaks, bleeds, or explodes.
Parenting a severely autistic child is not one trauma.
It is a death by a thousand cuts, delivered slowly enough that no one notices you’re bleeding out.
It is locking every door in your house.
And never misplacing a key.
It is remembering to deadbolt the front door – not to keep danger out, but to stop your child from running into it. To stop them from disappearing. From getting hurt. From hurting someone else.
I said it’s not the diaper changes – and that’s because there is something far more dehumanising than that.
It’s called smearing.
There is no dignity left after that.
No preparation.
No recovery.
It is hell on earth, and no human should ever have to endure it – yet many do, in silence, because admitting it feels forbidden.
There is the stress of being with them twenty-four hours a day.
And then there is something worse: the terror of leaving them.
Because leaving a non-verbal, high-needs individual with someone else means gambling with their safety. It means trusting a world that has never shown itself trustworthy.
And that brings us to the loneliest truth of all.
You are alone.
Parenting is isolating. Everyone knows that.
But when you are a special-needs parent, isolation becomes absolute.
There is no family who steps in to release you from your sentence – not for an hour, not for a moment. There are no offers of help. Not even when they are infants does anyone take that baby out into the world, give you space to breathe.
And if you’re honest with yourself, you know why.
Because the child is confronting.
Because the behaviour is disturbing.
Because it scares people.
And somewhere in the darkest corners of exhaustion, you find yourself thinking something you’re not supposed to think.
That they were born evil.
Ouch.
That word hurts.
But the truth is more disturbing than the word itself: the behaviours displayed by some of these children feel indistinguishable from evil when you are living inside them. Not because they are morally corrupt – but because sleep deprivation, fear, violence, and relentless exposure distort the human mind into survival mode.
There are broken appliances. Walls. Windows.
Yes – neurotypical children break things too.
But this goes further.
This is aggression.
Violence.
Harm inflicted on others.
Things you cannot excuse away.
Things you cannot unsee.
They don’t sleep – for days.
And neither do you.
They are constantly sick.
And they take you down with them.
And when you are sick – really sick – there is no one to lean on. No one to “uncurse” you, if you will. Certainly no one to unburden you, because at least parents of neurotypical children have childcare. They have options.
You have nothing.
It’s the refusal to eat.
The refusal of hygiene.
The rejection of even the most basic self-care.
It’s being bowled over while trying to unlock your own kitchen door.
It’s the injuries.
The muscles torn.
The body slowly destroyed.
Because they are not only aggressive – they are strong. Unnaturally strong.
Your role quietly mutates.
You are no longer guiding them to be good and do good.
Your job becomes protecting the rest of mankind – from them.
There are no fun days.
There are just days.
Or more accurately, counting down the days – finding a grim comfort in the fact that you are closer to the end than the beginning, because the end is the only thing that resembles rest.
You could plan a family holiday. Pretend it’s something to look forward to.
But it isn’t.
It’s just hell on earth in a different location.
Often worse – because hotel rooms don’t have deadbolts. Because unfamiliar spaces multiply risk. Because the stress eclipses any joy that might have existed.
And then comes the real kicker.
While enduring what feels like the spawn of Satan*, you are still expected to meet the demands of extended family.
They don’t help.
They never babysat – not once.
But they demand time, attention, energy.
Time you do not have.
Energy that does not exist.
And no – it’s not their fault the child was born. Grandparents should never feel obligated to raise their grandchildren.
But if help is not expected – why is entitlement?
Why do people feel so comfortable adding weight to someone who is already crushed?
The blessings come in the form of their neurotypical siblings – and I can say that with certainty, because no expectant parent has ever prayed for anything other than a healthy baby. And special-needs children, by definition, are not that.
Their siblings are the light – not because they are easy, but because they embody the part of humanity that still knows how to love without being asked.
They show kindness when no one is watching.
They extend empathy instinctively.
If, God forbid, they ever find themselves raising a special-needs child, they will not be alone – not just because of their father and I, but because they already know how to love in the dark and I know they will be there for one another without anyone ever needing to ask for help.
There is no recovering from a special-needs child.
No breaks.
No relief.
No one to lean on.
There are glimmers of radiance – but they do not outweigh the cursed experiences. Not even close.
This does not feel like drowning.
Drowning would be peaceful.
This is a hell on earth that makes you understand – truly understand – why death begins to look like the only opportunity to rest in peace.
And while I may not have the strength to do what other parents have done, I do not judge the depth of love they held for their children.
* “Spawn of Satan” – a phrase I grew up being called by my grandmother. If generational cruelty creates monsters, then perhaps this is simply what happens when pain is never interrupted – only inherited.








